Global Prader-Willi Syndrome Registry

It starts with us!

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Getting started

To get started, all you need to do is a register an account and begin responding to surveys. It's free to participate.

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How will my information be used?

View our about page to learn more about what we'll do with your information and how we'll protect your privacy.

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This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?

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